So my post chemo cycle is like this. Morning after blah. Next two days really blah as I have prednisone head and water retention, although I stop puffing like a balloon middle of the third day. Then last night I just went to sleep and feel a lot better so far today.
It's really important to sleep, drink water, eat stuff you like that's easy. I've become enamored of oatmeal with butter and cheese on those days and small bits of dark chocolate. Chicken soup is good too.
My mood feels a lot better too. Part of staying in the moment is recognizing you feel like crap and just letting that feeling persist. Not much you can do otherwise. Just relax, crochet, watch a funny movie but don't berate yourself for not being happy. The big difference is to let go of the crap moment when it's gone. Don't hold on to it. But realize it might come back. It is a weird place to be in.
Today the sun is shining, although we have fog and I have some energy to arrange stuff. Am thankful for that.
And I am half done with this chemo, I handled an increased dose just fine. Many good things.
Saturday, February 19, 2011
Thursday, February 17, 2011
Catching up on things
Not that much to say, really - chemo 2 is done so I'm half through the first set. Feel better with this batch since the prednisone taper is a bit quicker and I don't quite have as much pred head.
Big difference is that I have my wig, had my haircut and am now pretty much bald. Some pics of my bald state, and my short haircut as well as my wig, both on myself and on Lily. It's not so bad to not have hair, not really. I have lots of hats to wear. But I also like the shape of my head.
Anyway... can't quite figure out pics in posts.... will probably move the blog. Also can't discount pred head today... so enjoy the pics after this post.
<3
3laine
Big difference is that I have my wig, had my haircut and am now pretty much bald. Some pics of my bald state, and my short haircut as well as my wig, both on myself and on Lily. It's not so bad to not have hair, not really. I have lots of hats to wear. But I also like the shape of my head.
Anyway... can't quite figure out pics in posts.... will probably move the blog. Also can't discount pred head today... so enjoy the pics after this post.
<3
3laine
Tuesday, February 15, 2011
Hair
It's been a while since I've posted. Mostly because we have had visitors - first M's brother and then my dear friend Abigail. So it's fun and the weather has been totally fabulous - bright clear sunshine and gorgeous mountain views.
But anyway, my counts dropped and my hair fell out. Started around my birthday, had it cut to about 1cm all around, and it's been falling out a lot. In this case a picture is worth a thousand words. So I guess I will post some pics. But I will do that from my computer since it doesn't seem to work from the iPad.
But the point is that I have a cute wig, although it's not bad to be bald and I have cute hats.
I had my second chemo today and I am a little hopped up on prednisone, so i think I will post more later.
But anyway, my counts dropped and my hair fell out. Started around my birthday, had it cut to about 1cm all around, and it's been falling out a lot. In this case a picture is worth a thousand words. So I guess I will post some pics. But I will do that from my computer since it doesn't seem to work from the iPad.
But the point is that I have a cute wig, although it's not bad to be bald and I have cute hats.
I had my second chemo today and I am a little hopped up on prednisone, so i think I will post more later.
Friday, January 28, 2011
Not every day is full of sunshine.
I am tired and out of it today. Sort of blah, although I slept well. Lots of little annoying tasks to do, no mood for much of any of it. This is the intersection of tiredness and coming off the pred.
Side effects good, however. Time for a nap I think, a little music, crochet.
Side effects good, however. Time for a nap I think, a little music, crochet.
Thursday, January 27, 2011
On being a Lady of leisure
I realize how very lucky I am, in some ways. Sure it sucks to have breast cancer and to undergo tests, surgery, chemo and rads, plus whatever else is coming down the pike.
On the other hand, this gives me a chance to think and rest and to read, to learn. So that is lucky. I don't work, I have a leave of absence for my PhD and I have no fixed plans, other than to get well.
Of course I suspect i will become bored at times and no doubt the various meds will wreck havoc with my brain... This week of predndisone, for example has fogged my head and made me a little distracted, more than a little distracted. Although today is far better than yesterday.
And since this is my first cycle of chemo, I am waiting for the first big things to happen here. Change of taste, tiredness and hair loss. I am really tired... And i don't have a great appetite, but i still have my hair. Till next week.
But i am organizing myself here and arranging myself so that I have amusing things to do, and visitors to look forward to.
And M, of course has been wonderful. Nothing quite like the love and care of a good man.
So yeah this sucks. And yet.... I am determined to make the best of it. And to live in the moment as much as possible..because what else can we be sure of?
On the other hand, this gives me a chance to think and rest and to read, to learn. So that is lucky. I don't work, I have a leave of absence for my PhD and I have no fixed plans, other than to get well.
Of course I suspect i will become bored at times and no doubt the various meds will wreck havoc with my brain... This week of predndisone, for example has fogged my head and made me a little distracted, more than a little distracted. Although today is far better than yesterday.
And since this is my first cycle of chemo, I am waiting for the first big things to happen here. Change of taste, tiredness and hair loss. I am really tired... And i don't have a great appetite, but i still have my hair. Till next week.
But i am organizing myself here and arranging myself so that I have amusing things to do, and visitors to look forward to.
And M, of course has been wonderful. Nothing quite like the love and care of a good man.
So yeah this sucks. And yet.... I am determined to make the best of it. And to live in the moment as much as possible..because what else can we be sure of?
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